Iron Frustration

Just over 8 years ago, I struggled daily with exhaustion, headaches, heart palpitations, and shortness of breath. I wasn't getting enough sleep and took magnesium supplements. From experience, I know that iron deficiency is associated with a poorer quality of life.

The body temporarily stores iron as a protein called ferritin. However, if iron stores become too low for an extended period, hemoglobin levels in red blood cells decrease, leading to anemia. Iron is a crucial part of hemoglobin, the protein in red blood cells that transports oxygen throughout the body. The mineral also plays a key role in various cellular functions, including energy production and the maintenance of healthy skin, hair, and nails.

My physician believes that iron deficiency is readily treatable with iron supplements. After the 2017 anemia diagnosis, I started taking iron tablets daily, but cut back to three times a week. I found it hard to cope with the side effects of stomach cramps, nausea, and constipation. The result is over 16 infusions since, most recently, in August.

As reported on November 27, my blood test shows:

Iron                 20 g/dL         57% of the lowest recommended level

Iron Saturation 6 percent         30% of the lowest recommended level

Hemoglobin         12.2 g/dL 90% of the lowest recommended level

Ferritin                 20 0 ng/ml 76% of the lowest recommended level

Due to insurance coverage, I cannot receive additional infusions until the insurance review is complete. I am scheduled for infusions on December 22. Since November 27, I have been focusing on taking oral iron, which causes constipation. Over the past 15 days, I have seen blood in the toilet, indicating I might be losing more iron than I am absorbing from the supplements. 

My condition has worsened, and I am sure my hemoglobin levels have dropped. Right now, I feel lethargic, irritable, have pale skin, severe shortness of breath, and have almost fainted a few times. Research shows that Ferritin levels below 25 ng/ml increase the risk of failure. I am being VERY careful! I even upgraded my Friday home flight to first class to minimize any issues. The frustration over iron-related issues is affecting my mental health. Low iron has also been linked to depression.

I have been in North Carolina for the past week, sitting with Lulu, my son’s and fiancée’s dog. Lulu is injured; therefore, this is not the usual visit with vigorous play. Most of the time is spent keeping her calm. I leave Friday and hope to maintain iron intake to help me until I receive the infusions.

Carry on my friends, carry on!